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Family asks for help, hope after infant son’s life-changing diagnosis

Posted: 6:25 AM, Aug 30, 2018
Updated: 2018-08-30 07:25:07-04

Two months ago, Sharnada Provost’s life changed forever.

She had just given birth to her fourth baby boy and everything was normal.
Through pregnancy, delivery, Sharnada says everything went by the book.

But ten hours after delivery, the unthinkable happened.

“We heard the doctor say he was dead and gone,” Sharnada Provost said. “We hear them say they couldn’t revive him.

Provost said she cannot even begin to describe the fear she felt after she heard those words.

“To see him in his bassinet not breathing,” Sharnada started. “It was horrifying. I didn’t know how to feel, I was numb and didn’t know what was going on.”

Somehow, little Khorey pulled through. He started to breathe again. Sharnada said no one knows how long Khorey was without oxygen or what caused him to stop breathing.

“He came out crying, feeding, and everything,” Sharnada explained. “To see him in the bassinet, lifeless, was hard.”

She said she was told by doctors that Khorey may never see his first birthday and if he did he would never lead a normal life. Doctors diagnosed Khorey with Hypoxic Ischemic Encephalopathy or brain damage caused by oxygen deprivation.

And Provost says that little Khorey’s life has become a waiting game.

“The diagnosis is that he catches seizures. He’s unable to suck, gag, swallow which is basic functions of life. He’s unable to breathe properly. He stops breathing at times. If he doesn’t get treatment and OT he could be confined to a wheelchair. Hopefully, with the treatment, it won’t get to that point.”

The treatment that Shardnada is referring to is one that she researched and found on her own. It is called Hyperbaric Oxygen Therapy and can be used to improve cognitive function and spasticity in young children.

“It gives you 100% oxygen to the brain and allows the brain to regenerate dead tissue and cells in the brain,” Shardnada said.

For Khorey, the treatments would take two months and cost about $10,000. Sharnada’s husband’s insurance, he is a retired veteran, does not cover the procedure.

“Khorey is definitely a fighter,” Sharnada said. “I’ve seen him on a ventilator and people giving him the diagnosis of not living past a few days. To see him living and breathing at two months is amazing. As his mother and father, we’re willing to give him any treatment he needs to reach his full potential.”

Despite the long road ahead, Sharnada and her family are ready and will to take on any challenge that is thrown their way.

You can donate to a fund to help Khorey at:

www.gofundme.com/hopeforkhorey.