Acadiana mom shares her family's story on National Nystagmus Awa - KATC.com | Continuous News Coverage | Acadiana-Lafayette

Acadiana mom shares her family's story on National Nystagmus Awareness Day

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November 1 is National Awareness Day.

Nystagmus is an eye condition that causes involuntary eye movement and reduced vision.

One Acadiana mom shared the story of her family's fight to get treatment for her son.

At first glance, you'd never know that 6-year-old Reese Guidry and his little brother Ryker are both diagnosed with Nystagmus. Though there are times when Reese turns his head to the side, which helps him to better control his eye movement.

"When I move them my eyes stay still and when I don't move them, my eyes move," said Reese.

The boys' mom Laci, a nurse, set up appointments with one of only two doctors in the country who operate on Nystagmus patients.

"There's a doctor in California, Dr. Lingua, who we were actually scheduled to have surgery within November of last year. Around October of last year, we got a phone call that the surgery has been put on hold," said Laci.

An online petition backs up Laci's claims, showing that Reese's surgery may have been postponed because of alleged complaints about one of the doctors.

"There's multiple kids, or hundreds of kids, that have had the surgery with excellent results. From what I understand, is they're not able to use their results as proof that the surgery is beneficial for kids," said Laci.

Even without that proof, Reese's mom says she still thinks surgery is the best option.     

"It's frustrating because I feel like I know in my heart that this is what's best for Reese and what will really help him. It will help him not struggle in school. He won't have to learn braille. He may not have to use the devices to help him see. He would be able to play sports," said Laci.

For now, the Guidry's have contacted another doctor and are waiting for more treatment options, but that doesn't mean the first grader has any plans to slow down.

"He doesn't let his Nystagmus hold him back one bit," said Laci.

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