Oct 23, 2012 7:51 PM by Erin Steuber

Women's and Children's operate on baby with rare condition

A now 9-month old boy shows minimal signs of the surgery he had just over a month ago. Surgeons at Women's and Children's Hospital performed the procedure, for the first time ever in September. It corrected a rare condition, causing the childs head to be disfigured.

When Collin Landry was born earlier this year, his father noticed his nose was crooked. Physicians and family assumed it had something to do with his position in the womb. But as time progressed, they realized something was wrong.

"He was in physical therapy, and he had gone through for about a month and a half of physical therapy," said his mother Dawn Landry. "He would only roll over on his left side, he wouldn't roll over on to his right, he wouldn't grab for things."

Physicians diagnosed Collin with Craniosyntosis, which is an early fusing of bone plates. Those bone plates are not connected until age three to allow room for the brain to grow.

"There can be sometimes developmental delays, failure to meet milestones and problems of that nature," said Dr. Darric Baty. "Again, the worst case type scenarios is, if there is elevated intercranial pressure we're going to see symptoms of that as well which could be things like irritability, vomiting."

The only treatment for Collin's condition was a nearly 5-hour procedure. Part of his skull had to be removed and reshaped. Just over a month later, Collin only has a scar that is almost completely covered by his bright blond hair.

"He's looking great, I'm really happy with what we've achieved so far," said Dr. Hugo St. Hilaire. "As the brain grows, because he's still got a lot of growth left, it's just going to improve the contour of his (skull)."

His mother says his transformation is unbelievable.
"His demeanor is totally different," said Landry. "He's always been a happy baby but now, he's happy, you know, genuinely happy."

Women's and Children's Hospital is trying to adopt a treat not travel mentality. In the past, one of the only places for a child to be treated for this condition was in New Orleans.



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